LISAN - Life-situation for Children and Adolescents with Narcolepsy
About this team
Team information
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Research subject
Research environments
The LISAN research group has evolved from studies of the life situation for children and adolescents with narcolepsy as a result of vaccination with Pandemrix®. The research group involves expertise on studies on quality-of-life and well-being; studies with children and families; clinical knowledge of children with narcolepsy; and research on media and social networks. This collaboration enables the construction of a body of knowledge in regards to the life-situation for these children and young persons. The study also comprises the impact of a chronical disease, in short and long perspectives, and how trust in health care affects adherence to health recommendations.
The research team is managed by Professors Karin Blomberg and Mats Eriksson.
Research projects
- Living with narcolepsy as a result of vaccination against the swine-flu - quality-of-life and the need of support among children and adolescents and their families
- Narcolepsy after vaccination against the swine-flu - trust in health care and the role of social media
- Natural course, quality of life, heredity and mortality among children and adolescents who debuted with seizures 50 years ago, in Uppsala county
- PRICOV-19 - Quality of care and patient safety in primary care practices in times of a pandemic
- Stem cell transplanted teenagers and their way to adulthood
- Terms and conditions for adults with Spina Bifida in everyday life
- Translation and cultural adaption of the Quality Of Life In Chronic Child's Disease Questionnaire (QLCCDQ)for a Swedish context
- Translation and cultural adaption of the Trust in General Physicians Scales for a Swedish context
- Trust and compliance in the Swedish child vaccination programme with focus on HPV-vaccination
