Research in dual sensory loss/deafblindness
About this team
Team information
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Research subject
Research environments
The research group conducts interdisciplinary patient oriented research in dual sensory loss/deafblindness. The research encompasses various areas such as genetics, hearing, vision, balance, cognition and psycho-social research. Specific syndromes are Usher syndrome, Alstrom syndrome, CHARGE syndrome and others. The research is carried out at the Audiological Research Centre, University Hospital in Örebro and in close collaboration with the Department of Audiology, Örebro University Hospital. The research group also collaborates with international genetic laboratories and universities. The researchers have different professional backgrounds as ophthalmologists, ENT- physicians, audiologists, psychologists, sociologists, engineers and others. The Audiological Research Centre have one of the world’s largest clinical data bases for persons with Usher syndrome. The research is conducted with external grants where a 10 year old VR-grant Linnaeus-HEAD (Hearing And Deafness) within the Swedish Institute for Disability Research (SIDR) is a foundation.
Researchers
- Agneta Anderzen-Carlsson
- Hans-Erik Frölander
- Sarah Granberg
- Claes Möller
- Moa Wahlqvist
- Stephen Widen
- Elin Lundin, PhD student
Research projects
Active projects
- A perceptual and psychosocial analysis of surrounding events from a disability perspective
- Clinical and genetic studies of Usher Syndrome
- Clinical and genetic studies on hearing and balance in Alström syndrome.
- Health and family climate in families where one parent has deafblindness
- People with deafblindness - Health and services during the Covid 19 pandemic
Completed projects
- A study on severe dual sensory loss in elderly. Identification, diagnosis, prevalence, intervention and rehabilitation
- Alström syndrome. Studies on cognition and mentalisation
- Aspects on learning in Alströms syndrome. Facilitators and barriers for persons with Alström syndrome.
- Persons with Usher type II and working life
- Scientific evaluation of 10 years work of The Swedish National Expert team for diagnosing of deafblindness
- Scientific evaluation on family experiences of participating in diagnostics by the Swedish National Expert team on diagnosing deafblindness
Research funding bodies
- The Swedish Foundation Sparbanksstiftelsen Nya
- The Swedish Foundation Medicinsk Forskning vid USÖ
- The Swedish Foundation Mo Gård Forskningsfond
